Whew, what a day! In going to greet Ainsley this morning we
learned that she had already been visited by, and had a workout with the NICU
physical therapist. Now, Ainsley still has a therapeutic amount of
phenobarbital in her system. As I type this I am realizing that up to this
point I have probably thrown out many terms that aren't readily accessible to
everyone, and that I'm still learning about myself. So, I'll start by
explaining how this medication has been used with Ainsley. Ainsley was given
phenobarbital upon arriving in the NICU due to seizures she was having, and I
think was also utilized to slow activity in the brain after such a traumatic
birth. Phenobarbital is a barbiturate and has kept
Ainsley heavily sedated since her birth. Also, with Ainsley continuing to work
towards achieving a more active metabolism, the phenobarb is only slowly
working its way out of her system; thus keeping our little sweetheart pretty docile.
All that said, we arrived this morning to receive the report from her session
with the physical therapist. During her session, Ainsley showed movement in
both arms and both legs!! I mean give it up for a girl! Not only that, but just
as we arrived we were able to see Ainsley moving her arms around some when
touched and demonstrate some leg reflexes when you touch her knees! It was a
good morning. We also learned that when the nurse was checking her lungs for
fluids and suctioning them out, Ainsley's gag reflex kicked in; another first!
We couldn't have been much happier this morning.
After all the excitement of the morning we were
able to share the fresh news with some our best friends from Boone, NC who came
to meet Ainsley and bring us wonderful lunch. Ainsley did a little showing off
of her new found movements, but was also tired from the days activities, and we
tried not to overstimulate her too much. Today she also continued to crank out
some decent amounts of urine (never thought I'd be so excited about pee), and
seems to be improving on her kidney functions. All of her blood gas test
results came back today with almost everything within the acceptable range. We
were especially excited about her calcium level coming up because she was about
to receive a medication to help regulate it, but she didn't care for that and
said, "BAM, check those stats"!
So, today was a very busy day for Ainsley and she continues to
impress us with her improvements and her cuteness. She also had her first
bath tonight and had her hair washed as well, and is looking quite pretty! :
)
Not much else to say about today other than I am worn out from the
excitement and happiness of many firsts and continued steps of improvement. I
just continue to hope that each day has at least a fraction of the progress
from today. I hope everyone has a great night, and thank you all for your love
and support!
AWESOME PROGRESS!!! I love knowing that she's moving around and pissing like a race horse! Go, Ainsley GO! Thanks for the updates, Mike. I think about you guys constantly. Your beautiful daughter will continue to impress us all, I am sure of it.
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